Corriere della Sera - February 16, 2011
Continue the debate on the amendment to Milleproroghe. Ensuring privacy protection for sufficient safety data
MILAN - "There will be stricter anonymity of all parties involved. "Word of the Health Minister, Ferruccio Fazio, for alarm launched last week by Democratic Party Senator Ignazio Marino, who has reported a possible abuse of power. Let's talk about assisted reproduction and in particular of an amendment inserted in the decree Milleproroghe (fresh confidence in the Senate) that centers PMA will send their data to the Ministry of Health which will forward them to the Institute of Health and the Centre National Transplant. Now, therefore, the assurance of the Minister Fazio: "The decrees of the rule on the transmission of data on medically assisted procreation ensure the strict anonymity of donors and all those involved, as is already provided for by the rest. 14 of the Decree 191. The guarantee of anonymity has never expression was at risk because of fundamental constitutional principles and European. "
"SUFFICIENT GUARANTEES" - a position shared by President of the Guarantor for the protection of personal data Francesco Pizzetti, "We believe that there is reasonable assurance that when there will be the implementation of the decree will Milleproproghe data protection on fertilization assisted. " Insurance to that effect, after an initial warning, by the Guarantor to the rapporteur of the text in the Senate, came to the Authority by the Government itself. "In any case - added Pizzetti -, as the implementing decree should have the opinion of the Guarantor, will pay attention to this aspect. " Ignazio Marino was just to bring the matter to the Authority. "This is a very delicate question: the amendment signed by the senator Malan introduces the reporting requirement" required data "for facilities that deal with assisted fertilization in a manner to be specified in a decree of nature regulation - had written Marino -. I ask you to consider, in the name of protecting the right to privacy, if there is room for a report to Parliament and the Government under Law 196 of 2003. "
SCIENCE - In the debate also spoke Palagiano Antonio, head of health of Italy of Values. "Certainty of anonymity, purely scientific data transmission and streamlining bureaucratic procedures: these are the guarantees that we ask the government to protect the health of women in reproductive freedom for a medically assisted procreation and not state-assisted. This government with the approval of the amendment Malan complicates things, hog procedures. It is not justifiable that a rule requiring the submission to the Ministry of Health data generation, which may go by the name and surname of the patient to the traceability of individual oocytes. The data pertaining to the Ministry, which should be made public as interested in the Italian couples are other: detailed information on quality standards and in particular on rates di gravidanza per ogni centro, sia pubblico che privato, i tassi di complicanze e soprattutto il rispetto della riservatezza».
RISERVATEZZA - «Sono d'accordo con l'onorevole Palagiano: le coppie che accedono alla fecondazione assistita hanno diritto a una piena trasparenza dei dati, e alla possibilità di confrontare le buone e le cattive pratiche, i buoni e i cattivi risultati dei diversi centri» è la replica del sottosegretario alla Salute Eugenia Roccella, che conferma la tutela della riservatezza: «Stiamo da tempo lavorando a tutto questo e già nella prossima relazione al Parlamento ci saranno significative novità. La trasparenza, naturalmente, non può in nessun modo violare le norme della privacy e il diritto anonymity and confidentiality of the couples, and remember once again that the procedures adopted will be substantially the same as right now in terms of protecting the privacy of cell and tissue transplants. "
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